I'm Marietta Lenz, born with Franceschetti Syndrome and secretary for the association's board. I am also responsible for the protection of your personal data (data protection officer).

I love individuality, am enthusiastic about healthy food and support sustainability! I also love hiking, jogging and can't live without my hearing aids (BAHA5)!”

I'm Charlotte Stuiber, initiator of the Franceschetti Syndrome self-help group, mother of an adult son with Franceschetti/ Treacher Collins Syndrome with an open ear for medical questions and favorite pastimes assisting with endoscopic examinations in gastroenterology, reading and hiking.

My name is Martin Nicol and I am the club's media officer.

Professionally, I've been in the IT world since the mid-90s. In my free time I like to be out in the woods or on my bike.

I'm Hannah Hacker and I'm responsible for managing the club's finances. Professionally, I work in tax consulting, which is why I have an affinity for numbers. Since my younger brother was born with Franceschetti Syndrome, I have been familiar with the special needs from an early age.

As a native of Münster, I am a keen cyclist and love to swim in my free time, which is why I volunteer to support the German Life Saving Society as a swimming instructor.